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Emily whitehead

Emily Whitehead Foundation Fundraiser on the Yacht

Emily Whitehead Foundation Fundraiser on the Yacht

This year’s yacht party features a bigger boat, even better food and more decks than you can shake a stick at but there’s one incredibly important new addition.

A fundraiser for the Emily Whitehead Foundation!

 

About the Emily Whitehead Foundation


The Emily Whitehead Foundation is a non-profit that raises awareness and funds for

childhood cancer research. The Foundation aims to provide funding to researchers to develop innovative and less toxic treatments, such as immunotherapy, for emily whitehead foundationpediatric cancer patients. Emily Whitehead is a three-time cancer survivor who is alive today because of CAR-T cell therapy, in fact, Emily was the first child in the world to receive a CAR-T product and, as of May 2018, is six years cancer free.

The Foundation shares Emily’s story to inspire others to take action in the fight against pediatric cancer. We believe in a cure!

 

Our Story


In May 2010, at five years old, Emily Whitehead was diagnosed with standard-risk pre-b acute lymphoblastic leukemia (ALL). Typically, this type of leukemia has an 85% to 90% survival rate when treated with standard chemotherapy, radiation and bone marrow transplant. However, many children are resistant to these harsh treatments and relapse, as Emily did in October 2011, and again in February 2012.

Not willing to give up, Emily's parents, Tom and Kari Whitehead, uncovered a CAR-T cell therapy that had just become available at Children’s Hospital of Philadelphia (CHOP).  In April 2012, Emily was enrolled in a phase I trial at CHOP and became the first child in the world to receive the therapy and as of May 2018 Emily is six years cancer free.

With Emily’s story gaining attention worldwide, the Whiteheads recognized their opportunity to be advocates and help more patients receive this therapy. In 2015, Tom, Kari and Emily founded the Emily Whitehead Foundation, which raises research funds and awareness for innovative childhood cancer treatments.

Today, the Whiteheads mission is to “Activate The Cure” for all children fighting cancer. They especially support the need for development of less toxic treatment options for pediatric cancer patients, such as the CAR-T cell therapy that saved Emily. This therapy is now approved in the U.S., EU, and Canada to treat patients with relapsed/refractory acute lymphoblastic leukemia (ALL) and non-Hodgkin lymphoma (DLBCL) - and is available in clinical trials in several more locations worldwide.

Testimonials
  • Real thinking forward combining experts in the field from manufacturing, regulatory and value vision” – “great network with strong experience and sharing risks & opportunities
    Anne-Virginie Eggimann
    bluebird bio
  • Great program, great people, great venue.
    Klaus Kühlcke
    EUFETS GmbH
  • Dynamic, interesting and highly interactive event that promotes exchange and networking in highly specialized field of gene therapy.
    Nathalie Clement
    Powell Gene Therapy Center, University of Florida
  • Phacilitate provides a unique forum, bringing together research, process development, and commercial leaders on the cutting edge of cell, gene, and immunotherapy. A great conference for anyone wanting a comprehensive view of the field.
    Dr James Trager
    Dendreon
  • It was all business. I’ve never been to an event where over 80% of the conversations I had were constructive to my business objectives.
    Kurt Gielen
    Chemelot Campus B.V.
  • Great way to expand network with global experts in cell and gene therapy who are facing similar challenges.
    Steven Goodman
    GSK