Emily Whitehead was diagnosed with acute lymphoblastic leukaemia (ALL) when she was five years old. The five-year survival rate of ALL is 85% but Emily was in the minority. She relapsed in October 2011 and a bone marrow transplant was scheduled but Emily relapsed again just weeks before the transplant date and doctors felt they had run out of options and recommended that she go home on hospice.
At Phacilitate Leaders World 2019 in Miami, FL, Tom Whitehead, Emily’s father describes what happened from that moment and how his decision to get a second opinion from doctors at the Children’s Hospital of Pennsylvania (CHOP) changed their lives. Emily was the first child in the world to receive CAR-T treatment, a huge risk that has certainly paid off, as Emily is now seven years cancer free.
Anthony Davies, CEO, Dark Horse Consulting leads the interview with Tom Whitehead and Bruce Levine, Barbara and Edward Netter Professor in Cancer Gene Therapy at the University of Pennsylvania where we hear about Emily’s experience during treatment, her perfect flow cytometry results (that Bruce has displayed proudly in his office!) and Emily’s bravery at the FDA drug approval meeting.